Day 777 - Amazing News at ENT Appt 👏🏻 & 1st Time at the State Fair 🎠

Wednesday, February 15th, 2023

Mom was able to move up our ENT appointment to early this morning. For the past couple days Mom had been on the phone between ENT and the pulmonologist to make sure that the sleep study results were sent over to ENT in time for this appointment. The doctor said the sleep study results hadn't been sent over yet but that it didn't really matter because James was doing great. We discussed the next steps on scheduling an airway evaluation in the OR. Our options were to schedule for either end of April or beginning of March. Mom opted for beginning of March. She said that we could start capping James at home and start weaning his nap times to capped by letting him fall asleep with a cap on for a little bit, switching to an HME, and continue extending the length of time on the cap. Unfortunately she said she did not have any caps in the office and would need one of the physician assistants to pick some up at the hospital across the street. Getting them from our DME would take way too long because it involves submitting an order from the doctor, them denying it, needing a letter of medical necessity; it could be weeks! So the doctor said that Mom could come back in a few hours and grab some from the office.

After the appointment we needed to stop by the hospital where James had his sleep study which was literally a block away. A nurse was nice enough to walk outside and hand us the sound machine so Mom did not have to load everything into the stroller just to pick this up on the lobby. Shortly after the ENT doctor called Mom and let her know that the hospital did not have any red caps either. So Mom went online and search the Facebook groups to see if there is any available. Unfortunately it didn't look like this was something that people had extra of. One mom even suggested that you could get a 50¢ piece at Lowe's hardware store that would do the same thing. Mom ended up ordering them on a medical supply website for pretty cheap, but it said it could take up to 10 days for delivery. We would only have 3 weeks to get him fully capped for his airway evaluation so hopefully they get delivered soon!

In the afternoon we had early intervention therapy and James showed her that he has learned a lot of his colors and is really good at puzzles now.

James experienced his first State Fair in Tampa. "Aunt" Jess and "Uncle" David came to join us. The state fair is totally Dad's thing. 😂 He ended up winning a sonic the hedgehog stuffed animal and gave it to a little boy. James went on the carousel 🎠 with Mom. He has a love hate relationship with it. At first wanting to get off but by the time he gets comfortable the ride is over.

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com