Day 810 - School of Rock 🎸 & Night Eye Masks 😴

Monday, March 20th, 2023

Around 2:30am Mom was just getting to sleep as James had rough night with suctioning and needing oxygen on the vent. Mom figured She should call St Joe's PT to let them know that we wouldn't be coming in and James still wasn't doing well. James spent most of the day on the vent and did better most of the day. In the evening, Mom put him on the HME so we could go upstairs for a little bit before trach care.

Monday is typically Mom's "On the Phone" day. We started off the morning with the Vision Therapy place following up to schedule James for an appointment! Yay! 👏 They wanted to get us in tomorrow but since he is still sick we scheduled for their next available which was late April. Mom also confirmed Early Steps for a revaluation appointment for Friday via Zoom and confirmed two appointments for this week for our pediatrician and pulmonology. And these were just the phone calls regarding James!

We had early intervention therapy today and discussed how to teach James how to talk. For example, when teaching a child a color like red, you should just pronounce the word normally. A child may only come back with "ed". But trying to sound the word out by starting just with "Ra" is going to confuse them if that that's not what they're going to say. She sent Mom a chart which explained at what age they should know how to say what letters. [Below]

Today James wore one of his custom tees from Aunt Robin and tried out his Mickey eye mask from Juju. We are trying to get him comfortable with not using the bean bags over his face while sleeping since he will be getting the trach out eventually. 

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com