Day 825 - James Started Toby 💉 & Your Taxes 📑
Tuesday, April 4th, 2023
Today we received the refill for James' Tobramycin. Although the original plan was to not start the antibiotic until the 9th James had been having some green thicker secretions after just finishing the Cipro. We thought it was a good idea to get him on the medicine sooner than later, especially since he did have a slight trach infection with Stenotrophomonas Maltophilia. We decided to start Toby in the evening. We may stop it a few days early before decannulation depending on his symptoms. It is definitely a catch 22 because James typically needs more suctioning while he is on Toby.
James loves playing on his Baby Einstein piano but even more than that he loves showing people what he can do. Yep he is a show off! After he took a nap on Mom's bed Juju carried him around the house and showed him the art. He pointed directly to the Seattle space needle when asked even though he's never seen it before.
James loves wearing glasses now (for short periods of time). We have a pair of plain black rims for a baby that are just glass. We purchased them a long time ago when he first started eye patching. The ophthalmologist told us that sometimes kids tolerate glasses better and to just put the eye patch on that. Well that did not work for us. So these are just dress up glasses. Would you trust James with your finances? 😂 James also got to try on 3D glasses even though we didn't have anything for him to look at. Tommy took a nap on our rainbow pillow. That was a gift Dad gave to Mom this past November when we lost our baby boy. 🌈 Our next baby will be a double rainbow. 🌈🌈 🤞🏻
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