Day 828 - James Gets a Baby Sister, Bumps & Bruises!
Friday, April 7th, 2023
🥚Transfer day! This morning Dad and James came with Mom to the fertility clinic and waited in the parking lot. Today we transferred our baby girl who has been on ice for 4 years. She was created the same exact moment as James in April of 2019. 🤯 It is crazy to think about! We were really concerned if the embryo would survive the thaw. For those that have never gone through IVF they just have no idea what is all involved. There are just so many steps to the process. Even though you've been doing injections for weeks and your scheduled for a procedure at a certain time, you may be told right before the procedure that the embryo did not survive the thaw and then everything is cancelled. Everything would have been for nothing. We got lucky because the embryo did great! The procedure was success and now we just get to wait to see if the embryo sticks. ⏳ We were told that this embryo was an expanded blast which was one stage further along than the other embryos we've had but not quite hatching. Overall it is positive! The first official blood test by the clinic is on the 17th. These will be the 10 longest days ever! Of course Mom will be doing pregnancy tests starting on Day 4 because she cannot wait that long. 😰
👕 James and Mom wore their lucky Delco t-shirts that were created by Aunt Robin. Mom is not supposed to lift more than 20 lbs for the first 3 days. This is extremely hard since she takes care of James 24/7, but it is conveniently the weekend and Dad can help.
🎒 We gave that 1½ window to scoot around and explore on his own. He likes squeezing between the tiniest places and doing circuits around the living room. James squeezed between the rocking chair and the drawers full of medical supplies and pulled himself up onto the cushion to get to his toy shelf. He was still only in sitting but the next step would be to pull himself into kneeling or standing. As you can see from the last photo, he does pull himself up into standing while he is in the crib. 🧍🏻♂️We think this is because he feels safer if he falls, it's definitely much softer than the floor.
🤕 James is getting bumps and bruises like a normal toddler. He actually hit his head when he was scooting he went to move forward and didn't move his arms first, so his head slammed on the ground. Mom held him and rocked him while he cried big tears. We monitored his stats as he napped and watched for any abnormal symptoms.
💪🏻 Our biggest focus right now in PT is getting him to use his arms and bear weight. It will be super important that he knows how to do this in order to walk and catch himself when he falls. Part of the reason that he does not want to use his arms is because we essentially skipped crawling. Having a GJ tube and being on continuous feeds has really limited him more than the trach has. After our experience we definitely do not recommend getting the GJ if it is not an absolutely necessary intervention. For us we felt like we were pushed into getting the GJ just to get discharged out of the PICU. They told us that we could handle feeding issues outpatient. The GJ would stop James from throwing up, but if we just spent a little more time either changing the formula or changing the feeding schedule we think we could have made the G-tube work. 🤷🏻♀️
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