Day 840 - Fresh Haircut 💇🏻‍♂️ & Blocks in the Bath 🛀🏻

Wednesday, April 19th, 2023

Since we didn't have therapy today James ran some errands with Mom. We actually scheduled an appointment for James to get another haircut. We wanted to make sure he looked fresh for his to decannulation next week. It was one of the best haircuts he has had so far, because the hair stylist and knew how to distract him. Obviously his cousin gave him his best haircut ever! 😘 James was fine until Mom took him out of the stroller, then he just started screaming bloody murder. 😱 The only thing that calmed him down was when the stylist put on cocomelon. It's not ideal but it will distract James from anything. She finished up with the majority of his haircut with James being a good boy.

There's a short video of James below of him just screaming in the car while Mom is parked in the parking lot filling out some paperwork. James is just testing out his lungs and wants to see how loud he can get! 🗣️

The hospital call today for registration next week! This means that Mom needed to go over all of James' medication and medical history. They said that someone will be calling us next Wednesday with our start time for Thursday. 

James loved playing with his blocks today and even brought them into the bathtub! 🫧

💉Mom also had a second blood test today. They run blood tests every 2 days to make sure they are doubling. Unfortunately the number did not double. It went from 135 to only 246 which is 82%. This was already going to be a tough day since in November we had lost a baby with the second blood test. The doctor wanted to just continue blood tests since the numbers are still rising and it is still within range. 🤰🏻🤞🏻🙏🏻

"Toy"

"Book"

P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com