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The Journey of James Weston

Merry Christmas Everyone!

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December 28, 2023

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LindsayJanuary 16, 2024 at 10:57 AM
Yes! It is amazing to see James interact with her and can only imagine them playing together! ❤️
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James Takes His 1st Independent Steps!

August 13, 2024

Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

April 20, 2024

Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...

James Meets His Baby Sister for the 1st Time!

December 06, 2023

On Monday, December 4th, we celebrated the arrival of our daughter, Ella Jade Abramowitz! 🩷 She was born at 37 weeks + 1 day at 7:58am, weighing 5lbs 11oz and measuring 19 ¾ inches. Ella is thriving, her health bringing immense joy! 🥹 She's already breastfeeding, a special moment for me, and she's passing all her health checks. We've even seen her hold a pacifier and lift her head! Mike and I were anxious before the surgery, reliving our past experiences. Despite positive updates at all of Ella's prenatal visits, the nervousness was there. But, the birth was an incredible experience, beyond what we could've hoped for. Seeing Ella for the first time was an indescribable feeling of happiness! 😭 (Lots of happy tears) We're grateful for everyone's kind messages and support. Since our 5am hospital arrival on Monday, it's been a whirlwind with very little rest. This new journey is something we're embracing fully. I'm recovering, staying an additiona...

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Welcome to the Journey of James Weston

We appreciate all the prayers, love, and support from friends and family.

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Labels

Diuretic
Loading the car
LTV
Preeclampsia
Trach Baby
Trach Change
Ventilator
Withdrawal