The Journey of James Weston

Wednesday, June 2nd, 2021 Today after his bath and trach change Mom & James' primary nurse did a photo shoot! 📸 📸 📸 If it wasn't for his Primary Nurse reminding us to take pictures we would miss out on these opportunities. 🤗 We dressed up James in what would have been his "coming home" outfit for his "announcement photo"!  By the time we get to go home he will be too big for this. And we're not going home any time soon.  It's kind of crazy how James can look so different depending on the lighting or the angles of the camera. We are still not sure if he will have red hair or blonde hair or be a brunette! We see all of these colors right now! Definitely has blue eyes (for the time being)! Let us know which one is your favorite! 🥰  Also James has a new nickname in the NICU used by all of the RNs and RTs. In Mom's family James was also represented by Jim, Jimmy, Jim Jim, and Jimmer. Yes lots of people named James! Well we have started a new ...

Tuesday, June 1st, 2021 Changes/Updates: We have a new doctor starting today. He's had James a few times but originally had James when he was a micropreemie. He is only filling in for today and tomorrow. Increasing prune juice to 10ml from 5ml to help him with a bowel movement. James feels warm today and normally runs "cooler" temp at 97.4, but a 99.4 temperature doesn't count as anything. Gtube came out this morning! Balloon popped again due to James bearing down throughout the night during an episode. James is still irritable and sometimes inconsolable. Could it be a sedation wean? Gas? Reflux? Stooling? We don't feel that it's just him needing to be held because he will sometimes continue the episode after he is being cuddled. We managed to get some excellent photos of James smiling because his favorite RN and RT were giving him attention. We moved his crib to the middle of the room to get a change of scenery.  He had some major afternoon and evening stools...