The Journey of James Weston

Sunday, June 6th, 2021 Aunt Robin came for another visit! In between the snuggles, James had 3 pretty severe BPD episodes. Around 3:30pm Mom had noticed that the vent settings had changed. The Pressure Support over PEEP was now at 40 when it was originally set to 22. No one knows how this happened or who accidentally changed this. When the RT switched him back to 22 James had a severe BPD episode. The two others were most likely stooling related. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Saturday, June 5th, 2021 Juju came to visit James again! With Puppets! Changes:  Rate change decreased from 28 to 25 Micro wean of Methadone P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Friday, June 4th, 2021 No changes today. We've found that he really loves to be swaddled to go to sleep. He has outgrown the hospital blankets and a lot of the swaddle blankets Mom has purchased are too big and make James pretty sweaty. He is in between sizes right now. Welcome to life Baby James! Tomorrow Juju comes to visit again! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Thursday, June 3rd, 2021 Today James weighed in at 5275 grams (11lb 10 oz), gaining 30 grams (1 ounce).  We had a new doctor today in rotation, although he has had James before. No changes today from the doctor. Goal: To wean his vent settings to be able to get on a home ventilator.  Morning: As James was sitting up in his Boppy, one of the physical therapists walked by so we wanted to show her what he could do. She said he was doing so well with his head rotation! She let us know that if needed we can use two fingers to stabilize his head when he starts to turn it back and forth really quick, teaching him to hold it in place. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Wednesday, June 2nd, 2021 Today after his bath and trach change Mom & James' primary nurse did a photo shoot! 📸 📸 📸 If it wasn't for his Primary Nurse reminding us to take pictures we would miss out on these opportunities. 🤗 We dressed up James in what would have been his "coming home" outfit for his "announcement photo"!  By the time we get to go home he will be too big for this. And we're not going home any time soon.  It's kind of crazy how James can look so different depending on the lighting or the angles of the camera. We are still not sure if he will have red hair or blonde hair or be a brunette! We see all of these colors right now! Definitely has blue eyes (for the time being)! Let us know which one is your favorite! 🥰  Also James has a new nickname in the NICU used by all of the RNs and RTs. In Mom's family James was also represented by Jim, Jimmy, Jim Jim, and Jimmer. Yes lots of people named James! Well we have started a new ...