The Journey of James Weston

Wednesday, June 9th, 2021 James took selfies with Mom in the morning, had a relaxing bath, and got a trach change by his parents! He did Auto Control Mode for an hour for the 3rd time with no help on the Rate from the vent! He is doing great! James had speech therapy today and we tried putting water on his hand for him to bring to his mouth. He has been very interested in bringing his hands to his mouth. See photos below. James has been rather tired all day, even taking naps sitting up. He may be having a growth spurt. Blonde Hair & Blue Eyes P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Tuesday, June 8th, 2021 Changes/Updates: James is getting a full x-ray since yesterday's showed us some new findings. We want to make sure we weren't missing anything else. CLINICAL INDICATION: Recent screening for rickets at left wrist suggesting presence of healing fracture distal radius, now for a more inconclusive survey to evaluate for the possibility of other fractures. FINDINGS: There is callus associated with healing posterior right rib fractures, seventh, eighth, and ninth. There is a tiny bony projection from the medial proximal right tibia which is nonspecific, not necessarily of fracture. There is some mature formed periosteal reaction involving the femoral shafts likely the residua of a prior periostitis and possibly a normal physiological phenomenon. Periosteal reactions which had been  present  at the humeri on the prior study are now less conspicuous. IMPRESSION:  *IN ADDITION TO THE HEALING/HEALED FRACTURE OF THE DISTAL LEFT RADIAL METAPHYSIS, ...

Monday, June 7th, 2021 Juju came for a last visit before heading back to Jax with Aunt Robin and the dogs. Dad came back from his boys trip in Orlando. Monday mornings are always busy with scans, labs, and measurements. Changes/Updates: Measurements: Weigh-in: 5470 grams (12lbs!) Head Circumference: 38 cm Length: 49.53 cm Mom charted these on a grow chart for preterm boys born at 26 weeks. Blood Gas:  CO2 69.7 Wrist Xray: He has a healing fracture on his left wrist?! FINDINGS: 2 views of left wrist with particular attention to the distal left radial and ulnar metaphyses. Overall density of bones normal. Provisional zone of calcification is identifiable at both radius and ulna. There is deformity in the distal left radial metaphysis with angulation and some cortical thickening, suggesting a healing or healed fracture. Feeds: Increased to 120ml Vent Settings change:  James tried Auto Control mode today! This means that James was responsible for taking his own breaths. He still ...

Sunday, June 6th, 2021 Aunt Robin came for another visit! In between the snuggles, James had 3 pretty severe BPD episodes. Around 3:30pm Mom had noticed that the vent settings had changed. The Pressure Support over PEEP was now at 40 when it was originally set to 22. No one knows how this happened or who accidentally changed this. When the RT switched him back to 22 James had a severe BPD episode. The two others were most likely stooling related. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Saturday, June 5th, 2021 Juju came to visit James again! With Puppets! Changes:  Rate change decreased from 28 to 25 Micro wean of Methadone P.S. You can email James your love and support as often as you’d like. Mom and Dad read these emails to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com