The Journey of James Weston

Friday, August 13th, 2021 💉 Mom requested that James get Versed for his blood labs. It takes 15 minutes to kick in. Unfortunately they didn't wait and immediately started with sticking him. Mom sounds like a broken record everytime they need to do labs, letting them know that James is a hard stick, his veins are branched out, he is strong, that they will get the catheter in and then he will pull and you'll lose it if there aren't enough people holding him down. Every single time they have to stick him multiple times and say, "Man he is strong". Yes, now can someone make a note in his chart after 8 months? He was stuck 3 times. The first tube clotted so they needed to draw again. Mom asked if they could check for Factor V Leiden which is a clotting disorder that she has; there is a 50% chance that it gets passed down to James.  😷 Covid is rampant here in the PICU. Our neighbors have it and the staff has to where isolation gowns when entering. 😬 💩 Gave James a g...

Thursday, August 12th, 2021 7:30am James was headed down to Radiology with Dad. For anesthesia he got gas through his trach and meds via IV.  8:00am Dad was not actually allowed in the room. James went in for the procedure. 9:30am Procedure was a success! James now has a GJ.  James woke up and we noticed that his G-tube was filled with gastric juices from his stomach. It was shooting all the way up into the farrell bag. Really seemed like too much. Feeds were restarted at 32ml/hour, continuous for 24 hours all fortified breastmilk. Gastric juices coming out of the G (stomach). Shooting up to the Farrell bag. At the site we noticed his GJ was leaking around the stoma. It was practically pouring out onto the bed. Mom changed about six split gauzes before the nurse could get the doctor. They contacted GI for suggestions on what to do. GI suggested that we vent the G into a preemie diaper.  Good thing we have preemie diapers at home. Mom ended up putting a 4x4 around the butt...

Wednesday, August 11th, 2021 😷💉💰Covid Test Nonsense So yesterday in the evening they mentioned that James is going to need to get another covid test prep for the procedure. Dad let them know that he did not need another one because he just had one 2 weeks ago. After some back and forth the GI doctor said he didn't realize that he had just had a test 2 weeks ago and was okay with him not having another one. Well it seems as though that conversation never happened because this morning mom was bombarded by nurses, nurse practitioners, doctors (mainly the endoscopy team) demanding that James gets his covid test. Mom explained what she thought went down yesterday with the doctor being okay with it, but now they are saying that the hospital policy is that before a procedure a patient needs to have a covid test within the last 5 days. It is a little ridiculous that James has been quarantined to his room and was just tested 2 weeks ago and Mom was just tested 2 weeks ago. With all negat...