The Journey of James Weston

Friday, November 5th, 2021 Nurse rant Our nurse left early today to celebrate her daughter's birthday. James spent some time in his bouncer after Dad explained to the nurse that we would like her to work with him. Yes, it's kinda ridiculous that a male needs to be the one they listen to. Mom can stress all day long but as soon as Dad requests something from them, it's done. What's funny is that Mom is the one making decisions to let people go, I guess they haven't figured that one out yet. So the nurse said that Physical Therapy is not her specialty, and that she is a nurse. We get it, you went to school to become a nurse. But hey you're currently in Home Health, this isn't a high stress fast paced Hospital and we would like there to be a point to have nursing. One mentioned that if this assignment ends up being more like "nannying" she will quit. Again, this is Home Health, go work in a hospital. They say that they are here for his safety, but hon...

Thursday, November 4th, 2021 Not a whole lot to update. We are open to recommendations for toys good for development. We are currently looking into an Activity Play Mat but there are soo many on Amazon. He definitely like interactive things that have cause and effect but we'd rather not give him an iPad or cell phone. Let us know if you come across anything that has worked for you! Mom just bought him some bibs because he has been drooling like crazy. How cute are these tie dye shirts from Aunt Robin?!

Wednesday, November 3rd, 2021 Today our M,TH,F nurse filled in for our T,W nurse since she requested off.  Mom has been trying to get James scheduled for an Opthalmology appointment. It's taken weeks. We were referred to an office in Palm Harbor which is like an hour away with traffic so we'll need to bring additional oxygen tanks. Even more considering is the battery life on the equipment (ventilator, pulse ox, suction machine, and feeding pump). Finally getting through to the office they said that we couldn't schedule with them (even though we were referred by our pediatrician) because we need to fax them a Newborn Pediatric Eye Consultation Record to proved he passed his ROP test in the NICU. They informed me to get that from his pediatrician. Mom calls the pediatrician office who says they don't have that and that we should call the Hospital ROP (retina of prematurity) NICU nurse. Mom calls her, she states that she does not have this but that Mom would need to reque...

Tuesday, November 2nd, 2021 Our Tues/Wed Nurse took the day off. Hey, no problem! Actually less work for Mom. 🥳 James had Baby Makenna and Baby Harper over for a "Ladies with Babies Day". 😆  Since Mom does night shift almost every night, Dad held James during a staff meeting Zoom so Mom could shower. James keeping his eye on the phone. 😂 He'll take you outside. 😆  Showing James where the camera is. James knows where the camera is! New pajamas from Uncle Doc DP! Keeping his eye on the camera! 10 month old, 4 month old, and a 2 month old! P.S. It only takes a few minutes! See the James Weston lullaby post for more details. ❤️

Monday, November 1st, 2021 Below is a video of James early in the morning. He wakes up super happy with smiles every morning. Today was James' first physical therapy appointment. She is really good and is pushing for us to get it 2x a week. The idea is that she is teaching Mom and the nurses (😆) how to work with him so we can implement physical therapy into his daily routine even when she's not there. We worked on tummy time which he is not a fan of, rolling from side to side, and sitting up but using his hands to lean. He has some good head control but not so much in the torso. That's why he needs tummy time.  Overall his health is good. We had the windows open for a few days to get some fresh air. James had some more secretions than normal, so he might have allergies. But it could also just be him teething too. No teeth yet, all gums still for now. Tomorrow James has his first play date (kinda 😆) and gets a visit from two other babies in the neighborhood. P.S. Hey you! ...