The Journey of James Weston

Monday, March 21st, 2022 Still waiting on our DME to deliver us a new ventilator. Our backup ventilator hasn't been working since March 1st! Supposedly they are going to come tomorrow.  Today the family heads back to Jacksonville. Juju got cuddles before hitting the road. Leaving us with a ton of prepared meals and snacks! 😋  James started breaking out in a rash the same one he got before when he was on Bactrim. Small tiny little bumps on his face neck and chest. When Mom had brought this up to the Doctor in the hospital he dismissed the symptoms as just baby rash because they didn't look like hives. However the timing on this rash both times while on Bactrim has Mom questioning if he is allergic. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Sunday, March 20th, 2022 James had a photoshoot with Aunt Robin. His favorite games is peek-a-boo, except we say "Where is James? There he is!" He loves to sleep his his foot hanging off the railing. If you try and move him he will wiggle right back to this position. 🦶 We spent the whole day renovating Dad's home office. You can check it out on The Better Than Rich Podcast . James spent some time in his big boy stroller seat so we could watch him close by.  He is feeling much better since the antibiotic is in full swing now. We will be on this until Friday. We are still holding off on the new bolus feeding schedule for now. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Saturday, March 19th, 2022 James cuddled with Aunt Robin and had puppet shows with Juju. Today James started really making a lot of noise with only a deflated cuff, with no Passy Muir valve. Videos below.  James enjoyed a cold wine glass to his teething gums. He now has 5 teeth showing. James also loved his star projector light show that he received from Beverly! ✨ P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Friday, March 18th, 2022 Today was the first day of Dad's Better Than Rich event on Mastering Business Systems. Family would be coming in town from Jacksonville to help Mom for the few days Dad would be out of the house. James had a full day of playing with toys with Mom. He didn't take his second nap till 6:30pm. 😲 Just in time for company! In the evening, Juju, Aunt Robin, Champ 🐾, and Tommy 🐾 came to visit.  P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, March 17th, 2022 James had a few visitors today. It was the first time James interacted with other children/babies. Even though he wasn't feeling well he was all smiles. We showed our guests how James used the Passy Muir valve to speak. In the afternoon, Mom contacted our DME about our respiratory supply order missing items and the hold up on transferring our GI supply order. The responses were ridiculous. Why were supplies missing? Because they decided to give less to make sure everyone gets some (even though they are charging our insurance for the original amount). This was a decision supposedly made in a meeting but never communicated to the customers. Communication is non-existent. Why was our GI supply order still not transferred and shipped out? (We haven't received any GI supplies since January.) Well because people are lazy and everyone blames someone else. That's the easiest way for someone to handle something in this field. They are "waiting to get ...