The Journey of James Weston

Wednesday, September 28th, 2022 Unfortunately we had to cancel plans to meet up with some friends because we needed to get James' equipment fixed. On top of that the hurricane was now headed this way. 🌬️🌀⛈️ The rain started early this morning and it says it won't stop for a few days. 😲 We waited until 9am when the other DMEs opened and hadn't heard anything from our sale rep guy. Mom reached out directly to the two places he recommended. The first place just rang and rang with no way to leave a message. It sounded like they had already closed early because of the storm. The second DME called All About Pediatrics had picked up but was very rude. They were very short with Mom saying, "We don't rent, you're out of luck". Mom let them know that our DME could give them a referral because we have a ventilator dependent baby with a hurricane coming but they enjoyed telling Mom "No". It's so sad when people choose not to do the right thing. We are...

Tuesday, September 27th, 2022 Can you spot how many outfit changes James had today? 👕 🩳 His G-tube was leaking pretty bad. Today we decided to give James a haircut which was more like a trim. We took him outside and had him sit on Mom's lap while Aunt Robin trimmed him up. At first he was fine but then tried to grab the scissors ✂️ and cried the rest of the time. We think it was just too much all at once because it happened so quickly.  During the time outside on the patio lanai we noticed that his pulse ox machine was not working. Of course, the one piece of equipment we did not bring a back-up of broke! This monitors his oxygen and heart rate. It showed an error "Replace Sensor". We did all the things...wiping the sensor with alcohol, changing the pulse ox probe, turning it on and off. We have a new RAD-G pulse oximeter and it is not our favorite. Since it was after hours and our DME would be closed we decided to text our sales rep for Masimo who we were connected wit...

Monday, September 26th, 2022 James was up close and personal with the dogs. They are getting more and more comfortable with each other. 🐕 Champ is now a really chill dog and James was so excited to see him. Tommy is still jealous and is a little resistant to petting. James isn't acting like your typical toddler though; he is very cautious and waits until they aren't looking to quickly pet if anything. 😂 When James took a nap Champ decided he would lay down next to him to guard him while Tommy just wanted to smell him and possibly take his pacifier which looked like a fun new toy. 👶🏻 James needs a haircut bad, so we intend to trim it up tomorrow. 💇🏻‍♂️ Juju taught James how to play games on the iPad and James showed her how to do updates in the App Store. 🤣 James is on the move and we just know later in life he is going to love the monkey bars. 🐒 He scooted and wiggled his way across the living room and pulled himself under a chair. James has also turned into a real ight...