The Journey of James Weston

Friday, April 21st, 2023 After a morning of physical therapy 🤸🏻‍♂️with Mom, we all headed to the International Mall so Dad could run some errands. This was James' first experience seeing an escalator and he was really impressed! 😲 James is standing up in his stroller now and screaming all the time! He played peekaboo at Lululemon and ate lunch at The Cheesecake Factory. James was very open with trying all of our food but his favorite was different types of bread. 🍞 If you give him just a little piece of anything he will inspect it, taste it, and focus on it for a good while. 🥣 He did excellent at the restaurant.  Juju and Aunt Robin video chatted with James. After discussing the upcoming decannulation on Thursday Mom decided that we should go ahead and reschedule our vision therapy appointment on Tuesday. It's just not worth it to be in a doctor's office where there are just typically germs. When Mom called to reschedule unfortunately the next day open is over a month ...

Thursday, April 20, 2023 James started off the morning playing with his big bin of play food and then he did really well with physical therapy. James is really making a lot of progress with PT. Afterwards he was so tired so Mom took him upstairs to nap in a darker room that has darkening blinds. He woke up from his nap stretching and then wanted to scoot into Dad's office downstairs. His favorite toy is still his Baby Einstein Ukulele.  In the evening, Mom took some photos of Dad changing James' trach ties since this is some of the last trach cares we will do. James wanted to help and always knows where the camera is. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Wednesday, April 19th, 2023 Since we didn't have therapy today James ran some errands with Mom. We actually scheduled an appointment for James to get another haircut. We wanted to make sure he looked fresh for his to decannulation next week. It was one of the best haircuts he has had so far, because the hair stylist and knew how to distract him. Obviously his cousin gave him his best haircut ever! 😘 James was fine until Mom took him out of the stroller, then he just started screaming bloody murder. 😱 The only thing that calmed him down was when the stylist put on cocomelon. It's not ideal but it will distract James from anything. She finished up with the majority of his haircut with James being a good boy. There's a short video of James below of him just screaming in the car while Mom is parked in the parking lot filling out some paperwork. James is just testing out his lungs and wants to see how loud he can get! 🗣️ The hospital call today for registration next week! Thi...

Tuesday, April 18th, 2023 James made huge improvements today in PT. It was the most active he has been thus far! He scooted over to the stairs and started reaching to pull himself up on his own. James climbed the most stairs up he has ever done! At first everytime he reached a step he kept his head down and was trying to like roll up the step (yeah that wasn't going to work). The therapist showed him that if he lifted up his head he could reach for the next higher step. James went up like 7 steps and the therapist also showed him how to get down safely on each one. It was a huge win! Not only did he physically do it but he wanted to and initiated it! The other thing in PT where we are making huge strides is James learning how to use both arms to get down off of a cushion or chair instead of sliding on his butt. James is now doing this on his own without being told! Unfortunately we don't have any pictures during PT because it is nearly impossible to work with him and play photo...