The Journey of James Weston

Tuesday, December 6th, 2022 Today was a bad day. James had physical therapy in the morning and he cried as soon as he saw her and reached for Mom. This is a new thing he is doing. We have had PT with her for over a year now.  We have always really liked our physical therapist but recently on the last couple of visits we've found that she has grown very frustrated. Today she specifically voiced that she was frustrated and held him in a sitting position while James screamed bloody murder because she said she wanted to let him know who was in charge. That wasn't even what bothered Mom. The PT made a comment that "when he is 50 years old he will still be scooting around on his back on the floor". She also informed us that another 2-year-old she works with is already running. 👏 Good for her. Every child has a different background and path. Assumptive comments were made that Mom doesn't work with James at all. We think this was because James was difficult to work with ...

Monday, December 5th, 2022 James starting saying "Ba" which is huge because this is the first time he has made any sounds by closing his lips. This puts us one step closer to making sounds like "Ma" and "Da". Previously he has only been saying open mouth vowel sounds like "Ah" and "Yeah" (that's because his Mom is from Philly). Check out the 3 video below. Feet sticking out! P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Sunday, December 4th, 2022 Last night James had a saturation of 100% while sleeping. Even though he is not on the ventilator at night, he is not any oxygen. Mom and James had a busy day of Christmas movies, playing, and tickles. James learned how to work the light switch and picked that up pretty quickly. He is growing his thinking skills everyday! Then Mom brought James over to the kitchen in the evening for some purees. James enjoyed some bananas while Mom tried to cook a Mediterranean dinner. Mom also got another bath done by herself before Dad arrived home pretty late from the airport. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com

Saturday, December 3rd, 2022 Mom gave James a successful bath last night. It wasn't easy but it was possible. 🛁 🫧 🧼 We had a scheduled time to meet Santa at the hospital. It's setup as a drive thru to meet Santa and pick out a toy. Mom loaded up the car with all of the equipment. Even though James is off the vent the majority of the day we still need to bring the ventilator, oxygen tank, the rest of the equipment, and all the charging cables. You just never know what situation you may be in and you always have to be prepared. There is no sense in taking a risk just because it is more convenient and less work. Unfortunately we were 5 minutes late for our scheduled time slot and they had already packed up everything. Santa was gone. They had Mom vote for who had the ugliest sweater so that one of them could win a contest and then gave James options for a few different toys that were actually all the same. They were all very loud toys that would light up. Mom knew that James wo...